My sweet husband and I celebrated our eighth wedding anniversary this week. With a graduation the previous month, and several unexpected expenses, (or bad spending habits of yours truly... whatever) we decided to keep it low-key. My mom kept our little ones for several days, so we had some quiet alone time.
We decided to hit Fork & Screen for the movie "Me Before You." We had seen the previews, and although I was interested in seeing it, I didn't figure my man would be up for it. I assumed that it might hit a little close to home. From the trailers I viewed, it appeared a story about a young man with a sudden spinal cord injury that found he could still find love and happiness despite his profound change in functionality.
Three and a half years ago, my able-bodied, risk-taking, tenacious spouse hit a jump on the ski slopes harder and faster than he intended. He windmilled his arms to regain control, but flew past the hill and landed on a flat spot. His ski tips hit first, and he did what they call a scorpion. If you are familiar with that deadly little arachnid, you will recall that their tail appears to flip backward over the top of its head. Bob's face/head hit hard, and his entire body flipped over his neck, while his head remained face-down in the snow. It happened in a split second. It was the last hill of the day, and of the entire trip. They were headed down to eat dinner and to fly home the next morning. One last jump recorded to show his children that their dad still had it.
An unfortunate combination of bone spurs, natural degeneration, and a congenital condition called spinal stenosis created a situation where no spinal fluid was present surrounding the cord where the full impact occurred. His spinal cord had no cushion to protect it. Swelling began. He required surgery to decompress and fuse his cervical vertebrae from C3-C6. He is medically classified as an incomplete quadriplegic with Central Cord Syndrome.
Most of you know the details of our lives over the last few years. Bob spent a total of sixteen weeks hospitalized; he was in Utah for three, and here in Kansas City for thirteen. He went through intensive physical and occupational therapy, learning how to feed, groom, and bathe himself again, first power wheelchair-bound, then walking with an auto-ambulator, then a platform walker, a regular walker, and now a cane. I had to go through training on how to transfer him from a wheelchair to bed, chair, couch, and back again. I had to learn more about medications than I ever really wanted to know. I became educated in how to catheterize him, to give injections to prevent blood clots and some additional unpleasant tasks (for both of us) that I won't mention here. I became a full-time caretaker when I was already a full-time mom to both a one and four-year-old. Dressing an adult male at 6 feet and nearly 200 pounds is surprisingly more complicated than clothing a baby and a toddler.
It has been hard but oh-so worth it. We celebrate every milestone. Social workers informed us early on that a high percentage of marriages wouldn't survive this type of circumstance. Having lived it, we both can understand why (although it twists my soul into knots when I consider others whose loved ones left) because it is HARD. We are good. We have joy. Most importantly, we have Jesus, which gives us hope. We have a new normal. It certainly isn't how we had planned or hoped that our lives would be, but we have so much gratitude. We received blessings beyond measure on more than one occasion. We love each other. We have seen each other at our absolute worst and love each other despite our mess and humanness. It is a choice. Love is a choice. Joy is a choice. Surviving Is. A. Choice.
All that to say, I knew this movie would be a tear-jerker. I was surprised when my man suggested that we see it. "Its almost like it's us."
No. No, it isn't. SPOILER ALERT If you haven't seen the movie, and you're planning on it, stop reading right now. I'm going to tell you the ending. Put this down, set it aside, and come back to me after you've watched it.
As it happens, "Me Before You" is about assisted suicide. You're given a glimpse into that early on, but if you're like me, you may think that surely they wouldn't end the movie like that. You'd be wrong. At the end of the day, after waiting for six months to fulfill a promise made to his parents, after falling in love with this sweet girl hired as a caretaker and who LOVED HIM BACK, he still decided to fly to Switzerland and end his life with medical assistance.
Before I stir this particular pot, please don't send me ugly comments. If you are a proponent of medically-assisted suicide, good for you. We'll have to agree to disagree. I'm not looking for a fight; I am sharing my opinion based on a particular circumstance of which I have a thorough understanding. I can empathize with both main characters and certainly sympathize.
I was angry when I left the cinema. Furious that I just sat through a film that at the end of the day, attempted to invalidate our lives. A movie that pretty much just said to my husband, "You don't have enough value to continue living now that you aren't physically able to be the same man you were before your accident. If you loved your life before this happened, and are never going to have that same life again, you might as well pack it up, big guy, because it's just not worth it. You have no hope." A film that said to me, "You may love him enough to stay and help take care of him, but if you REALLY loved him, you'd stand by and let him die. Real love wouldn't want him to be sad about his condition. True love would 'let him go' and as an added bonus, maybe you'll be able to have this great second start and maybe go to Paris on his dime and get some new perfume."
Okay, that last part was over the top. If you've seen it, you'll know what I'm referencing. They weren't married; they didn't even know each other before his accident. I get it. He wanted her to get to go to school and experience a life she couldn't have. Very sacrificial. Blah. Blah. Blah.
On the way, home, Bob reminded me that I can never actually understand what it is like from his perspective. He reminded me that he was athletic and bold (some may say cocky) and vivacious. He never questioned his abilities. If you don't get it right the first time, you get up and do it again. He was driven, ambitious, and on top of the world. He did a swan dive off the top of Black Rock in Maui. We went zip-lining and rappelled in the Sierra Madres. He would roller-blade eight to ten miles at speeds that were ridiculous. He traveled for work, ran a company, and was 'large and in charge.' He now feels some level of pain every single day. He can't sit for extended periods of time. He can't stand for long periods. There are no risk-taking activities in his future other than walking the length of our house and hoping he doesn't catch a toe on the carpet. Bob felt for this character in ways most would or could not. He said that if he didn't have hope or didn't have Jesus, he could easily imagine himself in that boat.
While I can not fully comprehend everything Bob goes through every day, I certainly can recognize what it is to have to the entire course of your life suddenly and drastically veer to the left. I can picture the fatigue and doubt and overwhelming sense of anxiety. I can recall exhaustion and inexplicable anger.
I would never wish this type of trauma on a single soul. If I could go back in time, and change Bob's trajectory on that slope, or better yet, keep him from making that trip at all, I would do it. It's hard. I love him. I don't like to see him in pain. I don't like to see his pride take a hit if he stumbles. It hurts my heart for him to see people occasionally assume that physical disabilities automatically mean there must be a mental impairment. A man with the best of intentions once continued to call my larger than life husband 'Buddy' and did everything but pat the top of Bob's head and call him 'good boy.' He didn't realize how condescending he was, and apparently believed he was very helpful. My husband was gracious and kind, and took it like a champ while I seethed quietly.
I certainly do not want to minimize the loss. We have grieved. We have had to develop a new normal, but let me be clear, neither Bob's value, nor the value of our relationship comes from society's view of us, or from what either of us can physically accomplish without device or aid from other sources. He has merit and worth because he is a creation of the Most High God. He has children who adore him. He has a wife (ahem) that has no interest in walking through this life without him. We have friendships that strengthened over the course of this journey. We have friendships that developed because of this journey. We have grown more spiritually than we would have otherwise, because, let's be honest, it is a lot easier to rely on God and trust Him when your feet get knocked out from under you than when you think you've got it all within your control.
I wonder how many quadriplegics, paraplegics, or anyone suffering from an illness that leaves them wheelchair bound or dependent upon others for their necessities feel watching a story unfold that ends with the character they identify with deciding that it just isn't worth living if he has to be like them. Maybe they would feel differently if they were shown as they are...fighters, warriors, courageous and dignified. Unwilling to be told they are unworthy of breath. They empathize. Definitely. I am guessing that most of them realize their story isn't over. Perhaps if they could see an ending where they recognized that just because life AS THEY KNEW IT was over, that LIFE ITSELF is far from over, it could be uplifting.
I know it was just a story, and I'm just telling you ours. Our non-fiction, still wading through it, still getting murky on occasion, saga. It's far from over. We're just getting started, and it's a good story, dare I say, a great one. I will cherish every single moment of it, even the hard ones. I will eagerly anticipate the next eight years of life with this man, and hopefully another eight after that, and so on, and so forth. We aren't over yet, we're just at a new chapter.
Writer's Block
Writings Interrupted... by time, by kids, by life
Friday, June 10, 2016
Thursday, March 24, 2016
It Seemed Like A Good Idea At The Time...
Today was pretty unpleasant for me. Nothing happened, specifically, but rather a cluster bomb of twaddle, hormone-induced rage, and an inability to move without groaning after two excellent workouts. By excellent, I mean, they would be magnificent for someone who had some semblance of being in shape. I, by the way, am not that person. (Is smooshy a shape? Because if so, I totally retract my earlier statement.)
I should have known better to step on that stupid scale this morning. That started it. First of all, this is the very last week that I should even consider pressing a toe onto a scale. Not so much as my pinkie toe. Just like every other inappropriate weighing times, I can never seem to help myself. Eat a pound of chocolate at two o'clock in the morning, or binge-eat Apple Jacks in the middle of the night? The following morning seems like the perfect time to see how my weight is doing, don't you think?
I've had three sodas in a month and a half. If left to my own devices, I would drink one soda after the next until I floated away in a sea of lively carbonation. I've upped my H2O intake; I've tried to make better eating choices. I finally hit the gym for the first time in months. I attempted to run for the first time in I can't even remember how long. Never mind the fact that my shins acted like I'd never gone for a run, like EVER. I still went. Is it too much to ask that the numbers on the scale, at the very least, stay in the same general locale, or drop a bit here and there? I'm just asking that they stop climbing like they're trying to scale Everest, for the love.
Clearly the number today wasn't ideal. Combine this with feeling the need to swear whenever my legs move, being unable to locate my coat (or my wireless headphones, or my son's Moon Journal, or my keys, or my youth), not having time to fix myself the healthy breakfast I undeniably need, and this morning may have gotten off to a rocky start.
There may have been some outbursts. Perhaps a few doors were slammed. It's a possibility that full-on screaming tantrums were thrown. On the way to Bible Study. In the best possible nice Baptist girl way, of course. *Insert eye roll here for emphasis*
I then spent some glorious (yes, that's sarcasm, for those of you who don't know me well) time at Chuck E. Cheese with two legitimately adorable 4-year-olds, a good friend, and my mom. It actually would have been great, had my overall attitude not already been in the toilet, swimming around with my hopes of maintaining a diet.
If the scale is already being a complete tool, why not help it out by eating at Chuck E. Flipping Cheese. If you've already eaten a load of pizza, then why not have an ice cream cone while you're there? If you've already had a load of pizza and an ice cream cone, and you hurt everywhere, why not shrug your shoulders and agree when someone offers to grab Freddy's for dinner? Most importantly, if you're already eating super-de-duper nutritious Freddy's, then by all means, drink a large (because a medium just won't suffice) Mountain Dew. Mmm mmm good.
I'm hoping that tomorrow will be a better day. In fact, I'm afraid I must insist on it. That leaves me twenty-six minutes to finish this one off with a bang. If that scale so much as whispers an invitation to step on it tomorrow, I'm throwing it out the window. Wait, no... that's not right. Better day, better day, better day *muttered under her breath*. I will, ummmm... hide it until I can get myself together, NOT step on it, NOT jump on it from a height sure to destroy it permanently, and NOT break any other items in our house.
I should have known better to step on that stupid scale this morning. That started it. First of all, this is the very last week that I should even consider pressing a toe onto a scale. Not so much as my pinkie toe. Just like every other inappropriate weighing times, I can never seem to help myself. Eat a pound of chocolate at two o'clock in the morning, or binge-eat Apple Jacks in the middle of the night? The following morning seems like the perfect time to see how my weight is doing, don't you think?
I've had three sodas in a month and a half. If left to my own devices, I would drink one soda after the next until I floated away in a sea of lively carbonation. I've upped my H2O intake; I've tried to make better eating choices. I finally hit the gym for the first time in months. I attempted to run for the first time in I can't even remember how long. Never mind the fact that my shins acted like I'd never gone for a run, like EVER. I still went. Is it too much to ask that the numbers on the scale, at the very least, stay in the same general locale, or drop a bit here and there? I'm just asking that they stop climbing like they're trying to scale Everest, for the love.
Clearly the number today wasn't ideal. Combine this with feeling the need to swear whenever my legs move, being unable to locate my coat (or my wireless headphones, or my son's Moon Journal, or my keys, or my youth), not having time to fix myself the healthy breakfast I undeniably need, and this morning may have gotten off to a rocky start.
There may have been some outbursts. Perhaps a few doors were slammed. It's a possibility that full-on screaming tantrums were thrown. On the way to Bible Study. In the best possible nice Baptist girl way, of course. *Insert eye roll here for emphasis*
I then spent some glorious (yes, that's sarcasm, for those of you who don't know me well) time at Chuck E. Cheese with two legitimately adorable 4-year-olds, a good friend, and my mom. It actually would have been great, had my overall attitude not already been in the toilet, swimming around with my hopes of maintaining a diet.
If the scale is already being a complete tool, why not help it out by eating at Chuck E. Flipping Cheese. If you've already eaten a load of pizza, then why not have an ice cream cone while you're there? If you've already had a load of pizza and an ice cream cone, and you hurt everywhere, why not shrug your shoulders and agree when someone offers to grab Freddy's for dinner? Most importantly, if you're already eating super-de-duper nutritious Freddy's, then by all means, drink a large (because a medium just won't suffice) Mountain Dew. Mmm mmm good.
I'm hoping that tomorrow will be a better day. In fact, I'm afraid I must insist on it. That leaves me twenty-six minutes to finish this one off with a bang. If that scale so much as whispers an invitation to step on it tomorrow, I'm throwing it out the window. Wait, no... that's not right. Better day, better day, better day *muttered under her breath*. I will, ummmm... hide it until I can get myself together, NOT step on it, NOT jump on it from a height sure to destroy it permanently, and NOT break any other items in our house.
Sunday, March 20, 2016
Han Solo and Our Resurrection Garden
Palm Sunday started with a light snow this year, which considering it was in the seventies a few days ago, would have been shocking, had I not lived in the MidWest my entire life. Kansas likes to keep you guessing. "It's part of our charm," she said facetiously as her eyes rolled to the top of her head.
I'm not sure if my memory is failing, (which is possible, because Hello Peri-Menopause! Nice to meet you, ya schmuck.), or if the emphasis on the Triumphal Entry wasn't as prominent in the churches I grew up in. It is just as likely that they didn't spend a ton of time explaining the details in a way that the kids understood the relevance.
Blessed with a church that places a lot of significance on the entire Holy Week leading up to Easter; our children consistently have lessons and hands-on activities regarding everything that led up to the crucifixion and resurrection of Christ. On the Wednesday before Easter, they have a "Walk Through the Bible" event that starts with waving palm branches and shouting Hosannah in our little 'Jerusalem' and then moves into having their feet washed by our very gracious and humble servant leaders. It includes an example of the Last Supper, a Prayer Garden representing the Garden of Gethsemane, and ends with the reading of the Easter story and an explanation of the Resurrection. On Maundy Thursday, we have a self-guided silent communion service. Friday, we have a Tenebrae service (which for a girl who grew up in a small, old-fashioned, we ain't kiddin' around, we're Southern Baptists church is UNHEARD of) that is one of the most meaningful and touching services I've ever experienced. Lastly, the week culminates with the celebration that He is Risen; He is Risen Indeed.
My point being, my littles seem to know much more information than I did at their age. They're probably just smarter than me, so there's that.
Last week, as we prepped for Palm Sunday, my youngest came home with her construction paper palm branch that she made "just for me." She was explaining to her daddy and her big brother all about Jesus riding a borrowed donkey through the streets of Jerusalem. She bowed low at the waist, waved her branch, and with a very sincere little voice, shouted, "Han Solo, Han Solo!"
As we questioned if she meant "Hosannah," she dismissed us with a wave of her small hand, and a "yeah, yeah."
We returned home from church this afternoon (complete with a purple clothes-pin donkey, again made 'just for me' and actual palm branches) and set to work on our Resurrection Garden. I located this amazing thing on Pinterest. Check it out.
https://www.pinterest.com/pin/26458716535243572/
Today was the day to plant the grass seed. We will likely have an abundance of new grass now growing beneath our deck, because child-sized hands, a giant bag of grass seed, and a plant saucer may be asking for too much coordination out of a four and six-year-old. I am excited to see the grass start to grow. We need to go searching for our large rock that will be in front of the tomb. Monkey already picked out six sticks that we will form into the three crosses on Good Friday. I like that this is a full week and a half to two-week project that has separate lessons. It reiterates the main points. I love that my babies know and understand what I failed to grasp until I was older.
May each of you enjoy the rest of your Holy Week. If you're looking for a great place to worship, I may know a place. *wink, wink*
I'm not sure if my memory is failing, (which is possible, because Hello Peri-Menopause! Nice to meet you, ya schmuck.), or if the emphasis on the Triumphal Entry wasn't as prominent in the churches I grew up in. It is just as likely that they didn't spend a ton of time explaining the details in a way that the kids understood the relevance.
Blessed with a church that places a lot of significance on the entire Holy Week leading up to Easter; our children consistently have lessons and hands-on activities regarding everything that led up to the crucifixion and resurrection of Christ. On the Wednesday before Easter, they have a "Walk Through the Bible" event that starts with waving palm branches and shouting Hosannah in our little 'Jerusalem' and then moves into having their feet washed by our very gracious and humble servant leaders. It includes an example of the Last Supper, a Prayer Garden representing the Garden of Gethsemane, and ends with the reading of the Easter story and an explanation of the Resurrection. On Maundy Thursday, we have a self-guided silent communion service. Friday, we have a Tenebrae service (which for a girl who grew up in a small, old-fashioned, we ain't kiddin' around, we're Southern Baptists church is UNHEARD of) that is one of the most meaningful and touching services I've ever experienced. Lastly, the week culminates with the celebration that He is Risen; He is Risen Indeed.
My point being, my littles seem to know much more information than I did at their age. They're probably just smarter than me, so there's that.
Last week, as we prepped for Palm Sunday, my youngest came home with her construction paper palm branch that she made "just for me." She was explaining to her daddy and her big brother all about Jesus riding a borrowed donkey through the streets of Jerusalem. She bowed low at the waist, waved her branch, and with a very sincere little voice, shouted, "Han Solo, Han Solo!"
As we questioned if she meant "Hosannah," she dismissed us with a wave of her small hand, and a "yeah, yeah."
We returned home from church this afternoon (complete with a purple clothes-pin donkey, again made 'just for me' and actual palm branches) and set to work on our Resurrection Garden. I located this amazing thing on Pinterest. Check it out.
https://www.pinterest.com/pin/26458716535243572/
Today was the day to plant the grass seed. We will likely have an abundance of new grass now growing beneath our deck, because child-sized hands, a giant bag of grass seed, and a plant saucer may be asking for too much coordination out of a four and six-year-old. I am excited to see the grass start to grow. We need to go searching for our large rock that will be in front of the tomb. Monkey already picked out six sticks that we will form into the three crosses on Good Friday. I like that this is a full week and a half to two-week project that has separate lessons. It reiterates the main points. I love that my babies know and understand what I failed to grasp until I was older.
May each of you enjoy the rest of your Holy Week. If you're looking for a great place to worship, I may know a place. *wink, wink*
Labels:
donkey,
Faith,
Han Solo,
kids,
Palm Sunday,
Resurrection
Friday, March 18, 2016
Chaos, Then & Now
If you met me twenty years ago, I pray the resemblance to present-day Sarah would be vastly different. A few things would be similar. My entire life was shrouded in chaos, so that hasn't changed. My hair was red. That's about it.
In the last two decades, I have gained enough weight to create a whole other person. In fairness, I was anorexic back then, so I needed to gain at least a young child. Not the medium-sized adolescent that seems to have attached itself to my hind end, mind you, but at LEAST an eight or nine-year-old. My swearing has vastly improved. Not that I've gotten better at it (although...well, never mind), but I don't do it as often. I no longer hit movies on opening night with my girls, but I'm older, and therefore pretty tired. Friday night movies are a thing of the past. I no longer smoke a pack and a half a day. I can't tell you there aren't days when I miss that, though, if we're being one hundred percent honest.
I was reminiscing (or what's the word when you're recalling the past, but not looking over it fondly and with longing, because trust me when I tell you, twenty-something Sarah can stay in the nineties, people. She doesn't need to be popping back up into this century) and giggling a little about the absurd things that was just my normal.
My ex-husband was a piece of work. That is so beyond-the-pale polite, I can't even tell you. I was specifically recalling a time when I was working a mid-shift in the exciting world of telecom, and he was planning to attend a bachelor party. Now we had already argued quite a bit about said party, because you know, he wasn't a bachelor. My twenty-something self wasn't thrilled that my husband was going to be doing all manner of depraved things with this particular group of "friends," but he had babbled incessently about how he was just going because he was a DJ, and he would just be handling the music. Let's keep it real folks, I wasn't his mama, so I could only put up so much of a fight. I was even less entranced at the notion that he would be gone before I returned from work, and wouldn't be home until two or three the following morning.
We only had one vehicle at the time: a shortbed Ford Ranger. This meant my mom had to come pick me up from work so that he could use the truck to haul the stereo equipment. She also had to watch our daughter until my shift ended. Accomodations were made, and he went to participate in his stupid party.
I clocked out at 8:00 P.M, hopped in my mom's car with her and my girl, and headed home. I had an exciting evening of TV viewing to get to. I'm giggling thinking of that, too... because this was back before the cable box came with a remote. It was a little sliding thing on a box with three rows. Remember those things? No? Just me? Fine.
When we got to my apartment, I grabbed the diaper bag and my purse while my mom got the baby out of her carseat. I ran up our stairs, dropped the diaper bag, headed to the television, and tossed my purse behind me onto the couch. Instead of the silent landing you would have expected from a small purse landing on a large, overstuffed sofa, I instead heard the loud thump of my purse hitting the wall, and then a screechy noise as it slid all the way down to the floor. I was confused. What was happening? I turned in circles. Where is my couch? I walked into the kitchen. Where are our kitchen chairs? Why is there no furniture in my house except a television and a king-sized waterbed in the bedroom? Why is our balcony door wide open? Remember that cursing I mentioned in the second paragraph? I was using that skill set like a BOSS. My mom came in, and decided that she'd just take the girl back to her house. There wasn't really anywhere to put her anyway, SINCE OUR FURNITURE WAS GONE.
Keep in mind that this was pre-cell phone days. I'm pretty sure I had a pager back then (a little tiny purple one, if memory serves), but the dingbat I was married to did not. I didn't know for sure where the party was, and even if I did, I had no car to get there anyway.
About one in the morning, the phone finally rang. Dum-dum wanted me to know he'd probably be a few more hours.
"Um, where is my couch?"
"I have it. Where did you think it would be?"
"Well, I really didn't know, bleep bleep bleep. I guess I thought it would be in my living room. Because who in their right mind goes to a party, and thinks, you know what? I'm going to bring my COUCH."
"They needed extra seating. I was HELPING."
"When people ask for extra seating, I think they may expect, you know... folding chairs. NOT. A. SOFA."
There were several more exchanges containing quite a few more bleeps. It ended with me telling him in no uncertain terms that he better be home toot sweet with all of my furniture in tow.
Did I mention this was in the spring of 1993? Do you remember what happened in 1993? Perhaps hearing about a major flood in our neck of the woods? Knowing the cause of floods, you should also realize that we didn't have a tarp. I tell you that point, so you'll understand what happened when his drunk (so drunk) self showed up two hours later with my brand new fabric-covered sofa in the bed of the trunk while it was pouring rain.
Imagine my surprise (not really) when the front door was flung open and above the thunder claps and lightening strikes, the man I used to be married to bellowed for me to get my bleep outside and help him get the couch inside.
"Did I take the couch outside"?
"Sarah, I don't have time for this. It's pouring. Get down here and help me"!
"How'd you get the couch outside?"
"Richard helped me."
"Well, you'd better go get Richard to help you get it back inside."
"He's drunk."
"Then you'd better go get Richard's drunk bleep to help you, because I didn't take it out of the house, and I'm not carrying it back in."
Inevitably, I ended up carrying that ridiculously heavy thing into our apartment. I also nearly pulled my shoulder out of my socket when Drunky-Drunk dropped the top end while going up the stairs. While I haven't spoken to that man in years, I would lay money down (you know, if I weren't a good Baptist girl who doesn't ever gamble) that to this day, he would tell you that I completely overreacted, and that he still doesn't understand "what the big deal was?" I do NOT miss those days, even if they did provide for some pretty entertaining stories.
I'll take the chaos of two littles running around and exhausting their forty-something Mommy. The complete pandemonium of my man's spinal cord injury, the teenagers, the soon-to-be-graduate, the idea that I'm a Gigi. The peri-menopausal, un-medicated, ADD mess that I now embody on a daily basis is leaps and bounds ahead of where I was twenty years ago. There's been a lot of growing up, and lot of patience added (okay, well at least a little), and a whole lotta Jesus. Make no mistake, I'm still a hotbed of bedlum. Funny stories and hysterical children are absolutely an every day occurrence at the the Bye house, and I see no end in sight. In the end, though, I'll take the extra weight (to an extent, let's not get carried away...), the non-smoking, the lack of late Friday nights, because this crazy comes with Happy, Contentment, and Joy, Joy, Joy).
In the last two decades, I have gained enough weight to create a whole other person. In fairness, I was anorexic back then, so I needed to gain at least a young child. Not the medium-sized adolescent that seems to have attached itself to my hind end, mind you, but at LEAST an eight or nine-year-old. My swearing has vastly improved. Not that I've gotten better at it (although...well, never mind), but I don't do it as often. I no longer hit movies on opening night with my girls, but I'm older, and therefore pretty tired. Friday night movies are a thing of the past. I no longer smoke a pack and a half a day. I can't tell you there aren't days when I miss that, though, if we're being one hundred percent honest.
I was reminiscing (or what's the word when you're recalling the past, but not looking over it fondly and with longing, because trust me when I tell you, twenty-something Sarah can stay in the nineties, people. She doesn't need to be popping back up into this century) and giggling a little about the absurd things that was just my normal.
My ex-husband was a piece of work. That is so beyond-the-pale polite, I can't even tell you. I was specifically recalling a time when I was working a mid-shift in the exciting world of telecom, and he was planning to attend a bachelor party. Now we had already argued quite a bit about said party, because you know, he wasn't a bachelor. My twenty-something self wasn't thrilled that my husband was going to be doing all manner of depraved things with this particular group of "friends," but he had babbled incessently about how he was just going because he was a DJ, and he would just be handling the music. Let's keep it real folks, I wasn't his mama, so I could only put up so much of a fight. I was even less entranced at the notion that he would be gone before I returned from work, and wouldn't be home until two or three the following morning.
We only had one vehicle at the time: a shortbed Ford Ranger. This meant my mom had to come pick me up from work so that he could use the truck to haul the stereo equipment. She also had to watch our daughter until my shift ended. Accomodations were made, and he went to participate in his stupid party.
I clocked out at 8:00 P.M, hopped in my mom's car with her and my girl, and headed home. I had an exciting evening of TV viewing to get to. I'm giggling thinking of that, too... because this was back before the cable box came with a remote. It was a little sliding thing on a box with three rows. Remember those things? No? Just me? Fine.
When we got to my apartment, I grabbed the diaper bag and my purse while my mom got the baby out of her carseat. I ran up our stairs, dropped the diaper bag, headed to the television, and tossed my purse behind me onto the couch. Instead of the silent landing you would have expected from a small purse landing on a large, overstuffed sofa, I instead heard the loud thump of my purse hitting the wall, and then a screechy noise as it slid all the way down to the floor. I was confused. What was happening? I turned in circles. Where is my couch? I walked into the kitchen. Where are our kitchen chairs? Why is there no furniture in my house except a television and a king-sized waterbed in the bedroom? Why is our balcony door wide open? Remember that cursing I mentioned in the second paragraph? I was using that skill set like a BOSS. My mom came in, and decided that she'd just take the girl back to her house. There wasn't really anywhere to put her anyway, SINCE OUR FURNITURE WAS GONE.
Keep in mind that this was pre-cell phone days. I'm pretty sure I had a pager back then (a little tiny purple one, if memory serves), but the dingbat I was married to did not. I didn't know for sure where the party was, and even if I did, I had no car to get there anyway.
About one in the morning, the phone finally rang. Dum-dum wanted me to know he'd probably be a few more hours.
"Um, where is my couch?"
"I have it. Where did you think it would be?"
"Well, I really didn't know, bleep bleep bleep. I guess I thought it would be in my living room. Because who in their right mind goes to a party, and thinks, you know what? I'm going to bring my COUCH."
"They needed extra seating. I was HELPING."
"When people ask for extra seating, I think they may expect, you know... folding chairs. NOT. A. SOFA."
There were several more exchanges containing quite a few more bleeps. It ended with me telling him in no uncertain terms that he better be home toot sweet with all of my furniture in tow.
Did I mention this was in the spring of 1993? Do you remember what happened in 1993? Perhaps hearing about a major flood in our neck of the woods? Knowing the cause of floods, you should also realize that we didn't have a tarp. I tell you that point, so you'll understand what happened when his drunk (so drunk) self showed up two hours later with my brand new fabric-covered sofa in the bed of the trunk while it was pouring rain.
Imagine my surprise (not really) when the front door was flung open and above the thunder claps and lightening strikes, the man I used to be married to bellowed for me to get my bleep outside and help him get the couch inside.
"Did I take the couch outside"?
"Sarah, I don't have time for this. It's pouring. Get down here and help me"!
"How'd you get the couch outside?"
"Richard helped me."
"Well, you'd better go get Richard to help you get it back inside."
"He's drunk."
"Then you'd better go get Richard's drunk bleep to help you, because I didn't take it out of the house, and I'm not carrying it back in."
Inevitably, I ended up carrying that ridiculously heavy thing into our apartment. I also nearly pulled my shoulder out of my socket when Drunky-Drunk dropped the top end while going up the stairs. While I haven't spoken to that man in years, I would lay money down (you know, if I weren't a good Baptist girl who doesn't ever gamble) that to this day, he would tell you that I completely overreacted, and that he still doesn't understand "what the big deal was?" I do NOT miss those days, even if they did provide for some pretty entertaining stories.
I'll take the chaos of two littles running around and exhausting their forty-something Mommy. The complete pandemonium of my man's spinal cord injury, the teenagers, the soon-to-be-graduate, the idea that I'm a Gigi. The peri-menopausal, un-medicated, ADD mess that I now embody on a daily basis is leaps and bounds ahead of where I was twenty years ago. There's been a lot of growing up, and lot of patience added (okay, well at least a little), and a whole lotta Jesus. Make no mistake, I'm still a hotbed of bedlum. Funny stories and hysterical children are absolutely an every day occurrence at the the Bye house, and I see no end in sight. In the end, though, I'll take the extra weight (to an extent, let's not get carried away...), the non-smoking, the lack of late Friday nights, because this crazy comes with Happy, Contentment, and Joy, Joy, Joy).
Tuesday, March 8, 2016
No Kidding, Interuppted...
I keep telling myself (in my head, that is) that I MUST start writing again. Of course, then I find a reason to do something else. Occasionally, it is something totally worthwhile. Periodically, it may even be momentous occasions that distract me from my goal, but more often than not, it's something completely and totally trivial. I may need a nap. (Who am I kidding... I LOVE NAPS!) Perhaps there has been a TV series that I'm not completely caught up on. Perhaps my ADD has kicked into high gear, and I actually sit down to write but then forget what my topic was going to be...or start a sentence and remember that I forgot to start dinner, or forgot to stop the timer on something. In the end, excuses are excuses, and I need to get back in gear.
Those of you who know me, ok, all of you know that my sweet man had a spinal cord injury three years ago and that last year, well... last year sucked, to put it mildly. We thought he was regressing, the doctors had not a clue (someday soon I'll write a fabulous story about the importance of being an advocate for your loved one that requires intensive medical care) and we were clueless as to where our life was headed.
Isn't it amazing that after witnessing miracle after miracle, watching our sovereign God work in unexplainable ways, that your trust in Him can still waver when you're in the thick of it? I was swallowed up in depression, as was my man. He very literally could have died. Doctors thought he was in neurogenic shock. Want a real heart-stopper? Google that mess while you're sitting in an ER with your man. Lucky for me, I had a senior pastor that googled it on my behalf and sent me a text telling me not to.
I am lucky and grateful to have friends that love me enough to make me aware of when I'm having a pity party. They encourage me in my faith. They remind me of where we've been and what we've overcome. They smack me around a bit to help me get my head on straight.
Last week, I finally started the process of getting off medications that helped me cope with the last three years. It's time. It's time for a lot of things. Time for me to get the extra 40-50 pounds off my hind end. Time for me to live abundantly again. Time to be free of any bindings I may have allowed myself to be trapped by. Time to remember that my identity should be wrapped up in Jesus, and not in my junk. Time to hit Reset again, as many times as is necessary going forward. So on that note...
*reset*
Thursday, June 25, 2015
Where There Is No Way...
I haven't sat down with the old laptop to write in what feels like forever. Writing was totally interrupted... so see how my tagline is so appropriate?
So much has happened just since summer break started that I can't even compile it into a short and sweet list. Instead, I'll tell you the short and dirty good stuff that has happened in the past 2 days, with maybe a teeny tiny bit of background in the midst.
Most of you know that my man has really struggled over the last 6 months or so with a regression in his recovery. We (and by 'we' I mean Bob... I have merely been an observer of his torture) have gone through hospitals and inpatient therapy, outpatient therapy, Botox injections, doctor after doctor, and ZERO answers. Our PCP is amazing, however, and so she has tirelessly worked on finding someone who can help us. She made phone calls, and researched options, and checked in on us often. We heart Dr. Laura Ray.
She got us into a new physiatrist (rehab doc) after a lot of consultation with colleagues. We went yesterday, and met with the Nurse Practitioner for the initial consultation, and It. Was. Amazing.
He was taken off of three medications... two for his blood pressure, and one for spasticity. The one that was for spasticity was the cause of the low blood pressure, and while we had significantly reduced the dosage previously, he is now off of it completely. And guess what. His blood pressure this morning, with zero pressure medication was completely and totally normal. Not the low side of normal, but smack dab in the center of normal range. They rearranged when he takes his other spasticity medicine, so instead of 20 MG morning, noon, dinner, and bed, he now takes 20 MG in the morning, at 3pm, and 40 MG at bedtime. And it WORKED. He said he hasn't felt as good as he has today in months.
I am convinced that all of his problems over the past 6 months were drug related. Initially one drug, and then another. Where his previous physiatrist was saying things like, "you should probably consider getting a wheelchair" and "we just don't know why this happened" and my personal favorite, "I am unwilling to do anything that is outside of standard spinal cord protocol," she said things like, "What's your goal? To get back where you were last summer, or to keep progressing past that? You want to get back to work? Your legs are strong... I'm not sure why they would score you low in your legs. I see that the hips are where your weakness is. We can totally work on that. I can't wait for you to meet this doctor. I think we should get second opinions about A, B, and C." She was interested, positive, willing to be an aggressive advocate, and had an action plan. We. Love. Her. She also gave him permission to drive as soon as he feels ready, as long as he starts slow.
I will tell you that I didn't lose my faith during this process, but it is important to understand that discouragement was so prevalent and pervasive that I did have a daily struggle maintaining it. I want to be transparent with you, because I think people hear Bob's story and our resulting testimony, and expect that we could never feel despair or hopelessness after watching God work so deeply in our lives. I wish I could tell you that were true. I wish my flesh would stop trying to trip me up, and make me doubt. I wish that when Satan whispers in my ear that I'm not good enough, and that I will fail, and that if God really loved me this would have been over already, that I could tell him to stick it (in Christian love, of course) and not think twice about it. I wish that believers couldn't get discouraged once they become believers.
God never promised us that life would be easy. Quite the contrary. That being said, He equipped us to deal with all manner of things. He gave us an instruction manual. Our debt has already been paid. I do so love that He knows when we're at the bottom, and that when you ask for hope, He can give it to you in buckets. Oh, that tricky obedience though. Dipping a toe turns into a full-on swim without ever intending to.
I am so grateful that He provided me with friends who have covered and continue to cover us in prayer. He has blessed us both with people who have both been in our lives for years, and with people who we've developed new and wonderful friendships with. We continue to covet your prayers, because there is still a long road ahead of us.... and because you should all recognize by now that I'm the slightest bit wack-a-doo... so there's that.
Peace, love, and bacon grease!
So much has happened just since summer break started that I can't even compile it into a short and sweet list. Instead, I'll tell you the short and dirty good stuff that has happened in the past 2 days, with maybe a teeny tiny bit of background in the midst.
Most of you know that my man has really struggled over the last 6 months or so with a regression in his recovery. We (and by 'we' I mean Bob... I have merely been an observer of his torture) have gone through hospitals and inpatient therapy, outpatient therapy, Botox injections, doctor after doctor, and ZERO answers. Our PCP is amazing, however, and so she has tirelessly worked on finding someone who can help us. She made phone calls, and researched options, and checked in on us often. We heart Dr. Laura Ray.
She got us into a new physiatrist (rehab doc) after a lot of consultation with colleagues. We went yesterday, and met with the Nurse Practitioner for the initial consultation, and It. Was. Amazing.
He was taken off of three medications... two for his blood pressure, and one for spasticity. The one that was for spasticity was the cause of the low blood pressure, and while we had significantly reduced the dosage previously, he is now off of it completely. And guess what. His blood pressure this morning, with zero pressure medication was completely and totally normal. Not the low side of normal, but smack dab in the center of normal range. They rearranged when he takes his other spasticity medicine, so instead of 20 MG morning, noon, dinner, and bed, he now takes 20 MG in the morning, at 3pm, and 40 MG at bedtime. And it WORKED. He said he hasn't felt as good as he has today in months.
I am convinced that all of his problems over the past 6 months were drug related. Initially one drug, and then another. Where his previous physiatrist was saying things like, "you should probably consider getting a wheelchair" and "we just don't know why this happened" and my personal favorite, "I am unwilling to do anything that is outside of standard spinal cord protocol," she said things like, "What's your goal? To get back where you were last summer, or to keep progressing past that? You want to get back to work? Your legs are strong... I'm not sure why they would score you low in your legs. I see that the hips are where your weakness is. We can totally work on that. I can't wait for you to meet this doctor. I think we should get second opinions about A, B, and C." She was interested, positive, willing to be an aggressive advocate, and had an action plan. We. Love. Her. She also gave him permission to drive as soon as he feels ready, as long as he starts slow.
I will tell you that I didn't lose my faith during this process, but it is important to understand that discouragement was so prevalent and pervasive that I did have a daily struggle maintaining it. I want to be transparent with you, because I think people hear Bob's story and our resulting testimony, and expect that we could never feel despair or hopelessness after watching God work so deeply in our lives. I wish I could tell you that were true. I wish my flesh would stop trying to trip me up, and make me doubt. I wish that when Satan whispers in my ear that I'm not good enough, and that I will fail, and that if God really loved me this would have been over already, that I could tell him to stick it (in Christian love, of course) and not think twice about it. I wish that believers couldn't get discouraged once they become believers.
God never promised us that life would be easy. Quite the contrary. That being said, He equipped us to deal with all manner of things. He gave us an instruction manual. Our debt has already been paid. I do so love that He knows when we're at the bottom, and that when you ask for hope, He can give it to you in buckets. Oh, that tricky obedience though. Dipping a toe turns into a full-on swim without ever intending to.
I am so grateful that He provided me with friends who have covered and continue to cover us in prayer. He has blessed us both with people who have both been in our lives for years, and with people who we've developed new and wonderful friendships with. We continue to covet your prayers, because there is still a long road ahead of us.... and because you should all recognize by now that I'm the slightest bit wack-a-doo... so there's that.
Peace, love, and bacon grease!
Sunday, May 10, 2015
Putting On My Big Girl Panties
I know many of you that read this (hahahaha... I know that the few people on my FB who click on my link that I'll post later and take the time to read this) will not find it even a little bit surprising that the last month or so has been fairly chaotic. Hospital, inpatient rehab, ER visit followed by hospital number 2, outpatient rehab... and sprinkled in between there was Easter, our Women's Conference, Junior Prom for one of my kiddos, and I found about twenty pounds that had been hiding and steering clear of my hind end for months... you know... life.
In the midst of chaos, it can be challenging to remember that God's plan > My plan. Always. It can be easy to rest on your laurels instead on in Him when you're weary and burdened. You can forget to count your trials as joy, and you can turn into a tired toddler, complete with foot-stamping and tear-stained cheeks while having your faith tested. Maybe I'm tired of trying to produce steadfastness. Maybe I don't wanna!!
Last Sunday, my man had a pretty good fall. In public. In front of what seemed like 50 people including 9 of our sweet church family members. There were distractions and blame to go around, and he was understandably embarrassed, because no one likes to take a header in the lobby of a new and popular restaurant. He's been going to an outpatient rehab center five days a week, 6 hours a day for the last few weeks. He is getting stronger every day, and becoming more and more independent, but he's also exhausted at the end of a long week.
I wish I could tell you that I just roll with it. I mean, for the most part, I have always had some sort of chaos in my life. It has been somewhat of a soap-opera/comedy/drama... you name it. There was a time when I could push some sort of internal button, and shut it down. Shut down the internal pressure cooker, but also the emotions that come with it. Pack away the frustration and the fatigue into a little package, tie it up with a bow.
Oh, but I've been a mess this time around. That foot-stamping and wailing I mentioned in the paragraph above... oh yeah. That was me. "But God, I have been praying that Bob would be healed. We saw You work miracles with his recovery for over a year. Why is he going backwards? What is that proving? We've been faithful! We tell about Your hand in this. I want it now, now, now!"
And then... Bob texts me the day after his fall. The day when he was sore and struggling - to tell me that he got the opportunity to pray over a man at the rehab facility. He asked the gentleman if he could pray over him, he said yes, and Bob sat down and did just that. Then in a group counseling session, the facilitator asked Bob to share about resilience. He had suffered a setback after all, and maybe he could offer some insight into the importance of being resilient. So my man completely took over her meeting by explaining that the only thing that made him resilient was his faith in Jesus. There was another believer in the meeting and between the two of them, the facilitator lost complete control of her group. My point is, if Bob hadn't regressed enough to go back to this therapy, he wouldn't have had the opportunity to share his testimony with these people. He wouldn't have gotten the chance to pray for a stranger. God's ways are bigger than mine. He has a purpose.
In the midst of all this, we've had the chance to once again see our church family be the hands and feet of Jesus. Our Sunday School class has a sign-up to help us with transportation back and forth to the rehab center. It is in downtown, which is a bit of a hike, and the times coincide with school dismissal for our youngest and a plethora of other previously scheduled commitments. People have sacrificed their time, and their gas and signed up week after week. One sweet friend sent a hand-written card of encouragement that came at just the right time. Another one sent a private Facebook message to lift me up when they saw I was struggling. A team from our awesome Student Ministry came over and mulched our flower beds and trees.
We've been blessed by watching another family, a really young family, live out their faith very publicly. I encourage all of you to read her blog, from the beginning... and take note of how she ends each post, because it blows my mind in the best possible way. https://babypragel.wordpress.com When I'm being a whiny-butt, I can read this and get over myself pretty quickly. I know I didn't have the faith these sweet people have when I was their age... which was forever ago, but I digress.
PS. I totally got to hold that sweet baby today... and it was the coolest thing ever to see one of her sweet smiles and pretty blue eyes up close and personal.
God reminds me, oftentimes not so subtly, that I can suck it up at any time. I have a roof over my head, I have a husband who loves me to pieces, I have kiddos that look to me to be their Mommy (or Ma, as the case may be) whether I'm having a bad day or not. I have a Mom who is always around to help when I need her, and I have friends that will be there at the drop of a hat. I am blessed, so I'm going to suck it up, Buttercup.
“But blessed is the one who trusts in the Lord,
whose confidence is in him.
They will be like a tree planted by the water
that sends out its roots by the stream.
It does not fear when heat comes;
its leaves are always green.
It has no worries in a year of drought
and never fails to bear fruit.”
Jeremiah 17:7-8
In the midst of chaos, it can be challenging to remember that God's plan > My plan. Always. It can be easy to rest on your laurels instead on in Him when you're weary and burdened. You can forget to count your trials as joy, and you can turn into a tired toddler, complete with foot-stamping and tear-stained cheeks while having your faith tested. Maybe I'm tired of trying to produce steadfastness. Maybe I don't wanna!!
Last Sunday, my man had a pretty good fall. In public. In front of what seemed like 50 people including 9 of our sweet church family members. There were distractions and blame to go around, and he was understandably embarrassed, because no one likes to take a header in the lobby of a new and popular restaurant. He's been going to an outpatient rehab center five days a week, 6 hours a day for the last few weeks. He is getting stronger every day, and becoming more and more independent, but he's also exhausted at the end of a long week.
I wish I could tell you that I just roll with it. I mean, for the most part, I have always had some sort of chaos in my life. It has been somewhat of a soap-opera/comedy/drama... you name it. There was a time when I could push some sort of internal button, and shut it down. Shut down the internal pressure cooker, but also the emotions that come with it. Pack away the frustration and the fatigue into a little package, tie it up with a bow.
Oh, but I've been a mess this time around. That foot-stamping and wailing I mentioned in the paragraph above... oh yeah. That was me. "But God, I have been praying that Bob would be healed. We saw You work miracles with his recovery for over a year. Why is he going backwards? What is that proving? We've been faithful! We tell about Your hand in this. I want it now, now, now!"
And then... Bob texts me the day after his fall. The day when he was sore and struggling - to tell me that he got the opportunity to pray over a man at the rehab facility. He asked the gentleman if he could pray over him, he said yes, and Bob sat down and did just that. Then in a group counseling session, the facilitator asked Bob to share about resilience. He had suffered a setback after all, and maybe he could offer some insight into the importance of being resilient. So my man completely took over her meeting by explaining that the only thing that made him resilient was his faith in Jesus. There was another believer in the meeting and between the two of them, the facilitator lost complete control of her group. My point is, if Bob hadn't regressed enough to go back to this therapy, he wouldn't have had the opportunity to share his testimony with these people. He wouldn't have gotten the chance to pray for a stranger. God's ways are bigger than mine. He has a purpose.
In the midst of all this, we've had the chance to once again see our church family be the hands and feet of Jesus. Our Sunday School class has a sign-up to help us with transportation back and forth to the rehab center. It is in downtown, which is a bit of a hike, and the times coincide with school dismissal for our youngest and a plethora of other previously scheduled commitments. People have sacrificed their time, and their gas and signed up week after week. One sweet friend sent a hand-written card of encouragement that came at just the right time. Another one sent a private Facebook message to lift me up when they saw I was struggling. A team from our awesome Student Ministry came over and mulched our flower beds and trees.
We've been blessed by watching another family, a really young family, live out their faith very publicly. I encourage all of you to read her blog, from the beginning... and take note of how she ends each post, because it blows my mind in the best possible way. https://babypragel.wordpress.com When I'm being a whiny-butt, I can read this and get over myself pretty quickly. I know I didn't have the faith these sweet people have when I was their age... which was forever ago, but I digress.
PS. I totally got to hold that sweet baby today... and it was the coolest thing ever to see one of her sweet smiles and pretty blue eyes up close and personal.
God reminds me, oftentimes not so subtly, that I can suck it up at any time. I have a roof over my head, I have a husband who loves me to pieces, I have kiddos that look to me to be their Mommy (or Ma, as the case may be) whether I'm having a bad day or not. I have a Mom who is always around to help when I need her, and I have friends that will be there at the drop of a hat. I am blessed, so I'm going to suck it up, Buttercup.
“But blessed is the one who trusts in the Lord,
whose confidence is in him.
They will be like a tree planted by the water
that sends out its roots by the stream.
It does not fear when heat comes;
its leaves are always green.
It has no worries in a year of drought
and never fails to bear fruit.”
Jeremiah 17:7-8
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